ABBEY IS CRAWLING!!!!!!
And Amanda started Mother's Day Out on Tuesday (9/4). She cried at first but only for about 5 minutes & then they said she was fine & had a blast. At rest time, she didn't get off her mat, but she didn't sleep either. We weren't home 5 minutes & she looked up at me and said "nite-nite?" She was so tired! Hopefully she'll want to go back tomorrow!
2 milestones in the same week...they're not kidding when they say it goes by fast.
Wednesday, September 05, 2007
Tuesday, August 28, 2007
Some Recent Picts
Never far from one another...
Happy to sad in .2 seconds...ah, the joy of being 2!
Can never decided which bow she wants to wear...so she wears them all
Monday, August 27, 2007
Real Quick Update
Baltimore (Johns Hopkins) was a success in that the doctor there confirmed what we already know...Abbey will require spinal surgery(s) at some point. Everyone is in agreement that a surgery should not happen until she shows signs that the tethering is causing issues. Signs like any change in the appearance or loss of movement in her legs, feet or toes, or back pain.
So for now, we wait. Love her to pieces & wait. The JH doctor had some suggestions that we will take into consideration immediately like finding a good plastic surgeon and getting physical therapy started. Abbey was a great little traveler...we've got some cute picts of her on the plane & such I'll get uploaded in a day or two.
Overall Abbey is doing very well. She is steadily growing. She's pretty much done with baby food, although I have a few jars I'll stuff her with so they won't go to waste! She still loves peas! She finally said "Dada" on John's b-day...music to his ears (her first word was "mama!! - mostly when she was crying, but I'll take it!) She claps and as of last week waves bye-bye. She's also acting like she wants to crawl...she'll get up on her hands & knees and rock and is a pro at scooting backward (and getting stuck under the couch). Every once in a while she'll straighten her knees so she's up on her hands & feet, but then quickly decides that's not what she wants & sits down. Oh, and she finally figured out how to flip back over in her brace at night. She had learned to flip to her tummy about a month ago and was frustrated when she couldn't flip back over. She's such a trooper, has a great disposition and LOVES Amanda.
I'll upload some picts soon...cute ones of Amanda & Abbey in the play pool from this past weekend! Our prayer request at this time is that Abbey will continue to grow, but slowly & steadily...huge growth spurts might not be good for her tethered spinal cord situation. As always, we thank you for your love and support...we can't do it without you!
So for now, we wait. Love her to pieces & wait. The JH doctor had some suggestions that we will take into consideration immediately like finding a good plastic surgeon and getting physical therapy started. Abbey was a great little traveler...we've got some cute picts of her on the plane & such I'll get uploaded in a day or two.
Overall Abbey is doing very well. She is steadily growing. She's pretty much done with baby food, although I have a few jars I'll stuff her with so they won't go to waste! She still loves peas! She finally said "Dada" on John's b-day...music to his ears (her first word was "mama!! - mostly when she was crying, but I'll take it!) She claps and as of last week waves bye-bye. She's also acting like she wants to crawl...she'll get up on her hands & knees and rock and is a pro at scooting backward (and getting stuck under the couch). Every once in a while she'll straighten her knees so she's up on her hands & feet, but then quickly decides that's not what she wants & sits down. Oh, and she finally figured out how to flip back over in her brace at night. She had learned to flip to her tummy about a month ago and was frustrated when she couldn't flip back over. She's such a trooper, has a great disposition and LOVES Amanda.
I'll upload some picts soon...cute ones of Amanda & Abbey in the play pool from this past weekend! Our prayer request at this time is that Abbey will continue to grow, but slowly & steadily...huge growth spurts might not be good for her tethered spinal cord situation. As always, we thank you for your love and support...we can't do it without you!
Monday, June 25, 2007
Lots to Catch Up On...
First, evaluation of calorie intake proved that Abbey is/was not receiving the nutrition she needs. It seems as though she is only receiving about 3/4 the calories/nutrition she needs. We have been instructed to supplement her baby food with oil (canola or olive) and use a different recipe mixture of breast milk / formula. We are about a week into the adjustments and at a glance, it seems to be working. Abbey looks like she's packing on the pounds. We'll go in for a weight check in about another week & will let you know how she's doing.
Second, our follow-up appointment with the neurosurgeon was today. To our pleasant surprise, he has recommended that we wait on the spinal surgery. He put our minds at ease explaining how he has presented Abbey's case to his 4 other partners, her urologist, and a few more close colleagues across the country and they all agree that the best thing for Abbey is to wait, for now. He further explained that he feels confident that while the surgery would be successful (in un-tethering the cord from the lipoma), he questions what it would gain her? She is currently moving her legs & toes and until there appears to be some change in that function, he suggests we wait, watch and monitor her growth. We have plans to see him again in 3 months. During that time we will continue to seek additional opinions, pray and trust that God is in control. So, he's not saying there won't ever come a time when we might need to intervene, but it probably won't be in the next 3 months.
Abbey is just starting to put a little weight on her feet. She is still wearing the brace at nap & nighttime, but does not seem to be bothered by it at all. She's such a trooper. She loves it when we blow raspberries on her tummy - totally cracks her up. When Amanda walks in the room, she lights up - already adores her big sister! And Amanda is always concerned about Abbey - wakes up asking where she is; if she hears her crying always asks "Abbey OK?" And when Abbey fusses, Amanda is the first to run to her and start singing the ABC song...to which Abbey usually stops to listen and then smile lovingly at her sister.
As always, we thank you for your continued prayer; we could not proceed down this journey with out your love and support. JJAA
Second, our follow-up appointment with the neurosurgeon was today. To our pleasant surprise, he has recommended that we wait on the spinal surgery. He put our minds at ease explaining how he has presented Abbey's case to his 4 other partners, her urologist, and a few more close colleagues across the country and they all agree that the best thing for Abbey is to wait, for now. He further explained that he feels confident that while the surgery would be successful (in un-tethering the cord from the lipoma), he questions what it would gain her? She is currently moving her legs & toes and until there appears to be some change in that function, he suggests we wait, watch and monitor her growth. We have plans to see him again in 3 months. During that time we will continue to seek additional opinions, pray and trust that God is in control. So, he's not saying there won't ever come a time when we might need to intervene, but it probably won't be in the next 3 months.
Abbey is just starting to put a little weight on her feet. She is still wearing the brace at nap & nighttime, but does not seem to be bothered by it at all. She's such a trooper. She loves it when we blow raspberries on her tummy - totally cracks her up. When Amanda walks in the room, she lights up - already adores her big sister! And Amanda is always concerned about Abbey - wakes up asking where she is; if she hears her crying always asks "Abbey OK?" And when Abbey fusses, Amanda is the first to run to her and start singing the ABC song...to which Abbey usually stops to listen and then smile lovingly at her sister.
As always, we thank you for your continued prayer; we could not proceed down this journey with out your love and support. JJAA
Thursday, June 07, 2007
Counting Calories
A visit to the GI specialist today has us counting calories! (For Abbey - trust me, the rest of us are getting plenty!) We'll keep track of everything she eats/drinks for 3 days and send it in for evaluation. We all suspect she is not getting enough calories due to the fact that she does not drink more than a thimble-full. I'll bet we will have to add more formula to her breast-milk bottles...we'll see. Other than that, he thought she looked great and didn't seem to think there was any real cause for concern. Always good to hear that.
She really does help! 
We are still researching and praying about the spinal surgery...we feel your prayers and are sincerely grateful for your never-ending support.
Here are a few recent photos I just can't help sharing...
She really does help! jumpy...jumpy....jump...
what a Saturday morning looks like around our house...
Tuesday, May 29, 2007
Amanda Turns 2!
Monday (May 28) we celebrated Memorial Day & Amanda's second birthday! Despite the weather we had a wonderful time. Every family member was accounted for and Amanda loved every minute of it. Here's some photos of the day...
P.S. Abbey sat un-assisted today better/longer than she ever has before!
P.S. Abbey sat un-assisted today better/longer than she ever has before!
Friday, May 25, 2007
Decision
The neurosurgeon recommended surgery on Abbey's spinal cord. We must make a decision if this is something we want to do. There are risks associated with the surgery as well as if we opt not to do the surgery. We will meet with the neurosurgeon again in a month. Until then, we will do research, study and pray.
I'll try to explain her condition in layman's terms...in short, she has what is referred to as a tethered spinal cord. (1, 2) [here are two links that briefly explain what that means]. Her spinal cord is extra long (which in itself is not that big of a deal), however, the end of it is stuck to or tethered to a fatty mass of tissue. The surgery would attempt to release the cord from the mass so that it could float back into the spinal canal and be surrounded by spinal fluid as it should be as well as remove some of that fatty tissue.
This spinal defect is a "cousin" condition to cloacal extrophy and therefore, it is unknown as to why it happens. It is a form of spina bifida.
It is recommended that the surgery take place some time between 6 and 12 months of age. The surgery takes 3-5 hours. About a 10 inch incision is needed (is her torso even that long?). Recovery is expected to be about 7 days unless complications arise. There is a chance that re-tethering can occur at some point in her life, which would mean another surgery.
Abbey is a beautiful child inside and out. She continues to teach us more about life than we ever imagined. She finally got her foot into her mouth the other day - she's been going at it for well over a month now - loves to suck on those toes! And have I mentioned that she's rolling over? and over and over...
I'll try to explain her condition in layman's terms...in short, she has what is referred to as a tethered spinal cord. (1, 2) [here are two links that briefly explain what that means]. Her spinal cord is extra long (which in itself is not that big of a deal), however, the end of it is stuck to or tethered to a fatty mass of tissue. The surgery would attempt to release the cord from the mass so that it could float back into the spinal canal and be surrounded by spinal fluid as it should be as well as remove some of that fatty tissue.
This spinal defect is a "cousin" condition to cloacal extrophy and therefore, it is unknown as to why it happens. It is a form of spina bifida.
It is recommended that the surgery take place some time between 6 and 12 months of age. The surgery takes 3-5 hours. About a 10 inch incision is needed (is her torso even that long?). Recovery is expected to be about 7 days unless complications arise. There is a chance that re-tethering can occur at some point in her life, which would mean another surgery.
Abbey is a beautiful child inside and out. She continues to teach us more about life than we ever imagined. She finally got her foot into her mouth the other day - she's been going at it for well over a month now - loves to suck on those toes! And have I mentioned that she's rolling over? and over and over...
Monday, May 21, 2007
I know, it's been a while...
What spare time I do have is usually spent sleeping or taking a shower...
Abbey has an MRI tomorrow, so that the neurosurgeon can evaluate her spine. I'm a bit nervous to say the least; they will sedate her. Her appointment isn't until 2 PM and she can't have anything to eat after 10 AM - how's that going to work???
We'll then return on Thursday to visit with the doctor & hear his evaluation.
Please keep Abbey in your prayers this week...we pray that her spinal issues are ones that can be treated.
Abbey has an MRI tomorrow, so that the neurosurgeon can evaluate her spine. I'm a bit nervous to say the least; they will sedate her. Her appointment isn't until 2 PM and she can't have anything to eat after 10 AM - how's that going to work???
We'll then return on Thursday to visit with the doctor & hear his evaluation.
Please keep Abbey in your prayers this week...we pray that her spinal issues are ones that can be treated.
Friday, April 27, 2007
Big Blue Eyes...
If I had a dime for every time someone said that...So here they are - right back at ya.Daddy can't stand that blue vein between her eyes, but mommy knows it will fade over time.
I'd like to say this is a recent picture, but it's really not, its about a month old. We're all doing well over here. Not much to report, which is good sometimes. Abbey is still doing great with solids - started meats - yum! (gag) And she still doesn't drink much.
I recently had a dear friend remind me to focus on the positives when it comes to Abbey...it's made me stop and reflect how blessed we are to have this dear child. It's sometimes easy to get carried away with all that has to be done with her "conditions". It's nice to be still and know that she is exactly who she is supposed to be. One with a purpose we may never know...my purpose is to love her...that I can do.
Amanda has recently come to learn about "dip" (i.e. Ranch Dressing) thanks to her cousin Anna & an overnight trip to Aunt Jan's.Here's how much she loves it...
(yes, that's a scrape above her right eye; she fell on the driveway - her middle name "aint" Grace for nothin'!)
Tuesday, April 17, 2007
Featherweight Class!
Weighing in at 10 pounds, 10 ounces and 23 3/4 inches, Abigail Marie is officially 6 months old! (as of Monday)
The good news of the week is that Abbey now only has to wear the club-foot brace when she sleeps! The doctor thinks her feet look great and unless there are any issues (blisters, etc.), we won't return to see them for 3 months.
Abbey's pediatrician thinks she looks great too. However, since she is so small (no longer on the charts) he has suggested that we seek the opinion of a GI specialist - just to be sure there is nothing more we need to consider for her nutrition. We will do this some time in the next 2 months. Unless something else comes up, we won't see the pediatrician again for 3 months.
As far as the nerves at the base of Abbey's spine, she is scheduled to have an MRI done on May 22. They will have to sedate her in order to ensure they are able to obtain the pictures they need. We then see the neurologist 2 days later on May 24 for the initial consultation.
As always, we continue to ask you to pray for this dear child. Specifically ask God to give her the ability to grow and develop as normally as He has planned. We also ask that she would begin to be a better drinker. I know that sounds funny... she is doing great with solids, but has never been a big drinker; we are lucky if she drinks 2 oz a feeding. She obviously needs more to grow and flourish.
The good news of the week is that Abbey now only has to wear the club-foot brace when she sleeps! The doctor thinks her feet look great and unless there are any issues (blisters, etc.), we won't return to see them for 3 months.
Abbey's pediatrician thinks she looks great too. However, since she is so small (no longer on the charts) he has suggested that we seek the opinion of a GI specialist - just to be sure there is nothing more we need to consider for her nutrition. We will do this some time in the next 2 months. Unless something else comes up, we won't see the pediatrician again for 3 months.
As far as the nerves at the base of Abbey's spine, she is scheduled to have an MRI done on May 22. They will have to sedate her in order to ensure they are able to obtain the pictures they need. We then see the neurologist 2 days later on May 24 for the initial consultation.
As always, we continue to ask you to pray for this dear child. Specifically ask God to give her the ability to grow and develop as normally as He has planned. We also ask that she would begin to be a better drinker. I know that sounds funny... she is doing great with solids, but has never been a big drinker; we are lucky if she drinks 2 oz a feeding. She obviously needs more to grow and flourish.
Sunday, April 15, 2007
Easter Fun!
Ok, I know I'm a week late - y'all give me a break - it's busy around here!
The Loot!
The Loot!
The Hunt...
The other hunt...
Our sweet girls...
(we need some hair!!!)
Wednesday, April 11, 2007
Quick Update On Abbey
Urologist appointment today. Sono & visit with our favorite chap from across the pond...Sono looks great - kidneys are growing as they should. Bladder still has some debris but at this point not a concern. He confirmed that yes she is small and IF there is an issue, it could be with her small intestine (large intestine seems to be working fine - I won't post how we know that - it's a little TMI). Her small intestine might not be long enough to absorb all the nutrients she needs.
She is doing very well with eating solids. She is now up to 2 T of cereal w/ fruit in the morning & 1.5-2 jars of veggies between lunch & dinner - 3 meals a day! Our visit with her pediatrician should tell us more next week. She could just be a small kid! We ask that you continue to pray for Abbey's overall health and specifically that her small intestine is in deed long enough.
She is doing very well with eating solids. She is now up to 2 T of cereal w/ fruit in the morning & 1.5-2 jars of veggies between lunch & dinner - 3 meals a day! Our visit with her pediatrician should tell us more next week. She could just be a small kid! We ask that you continue to pray for Abbey's overall health and specifically that her small intestine is in deed long enough.
Sunday, March 25, 2007
Abbey's Story
All of the text from our other website (abigailmariedeller.com) was added to this one. I know most of you have read it, but wanted to add it here for the newcomers. It messed up the dates on this websites posts, but I figured it was worth it. I'll try to go back & add the appropriate photos as well when I get some more time.
I know I said in my last post that Abbey loves those sweet potatoes, and she does, however, she's not as fond of squash or sweet peas. She tolerates them, but the sweet potatoes are still her favorite. I also said she didn't seem to care if her bottles were mommy's milk or formula, well it seems just about the time I wrote that she decided she didn't want to take a bottle anymore - no matter what was in it! I've tried every nipple there is on the market, she just won't have it. Which of course has me concerned because that is where she is supposed to be getting her extra-needed calories. She's SO tiny. I even tried some oatmeal - not a fan - even with FRUIT. So when you're saying your prayers for this little one, please pray she'll find her appetite soon and begin to grow!
Here she is in her excer-saucer...Amanda likes to show her how all the toys work - thank you big sis! Her feet just dangle...
I know I said in my last post that Abbey loves those sweet potatoes, and she does, however, she's not as fond of squash or sweet peas. She tolerates them, but the sweet potatoes are still her favorite. I also said she didn't seem to care if her bottles were mommy's milk or formula, well it seems just about the time I wrote that she decided she didn't want to take a bottle anymore - no matter what was in it! I've tried every nipple there is on the market, she just won't have it. Which of course has me concerned because that is where she is supposed to be getting her extra-needed calories. She's SO tiny. I even tried some oatmeal - not a fan - even with FRUIT. So when you're saying your prayers for this little one, please pray she'll find her appetite soon and begin to grow!
Here she is in her excer-saucer...Amanda likes to show her how all the toys work - thank you big sis! Her feet just dangle...
But that's OK, she still enjoys a little "hang" time in the chair!
2-7-07 Love Them 'Taters
Abbey had her first taste of "real food" tonight - sweet potatoes - YUM! Her trip to the pediatrician yesterday told us that while she appears to be developing right on track for a 4.5 month old, she's a little on the lean side. Weighing in at just 9 lbs 12 oz her doctor has suggested that we supplement her bottles with formula in effort to increase her calorie intake. This is not the first time we have been down this road; we applied the same routine back when we were trying to get out of the hospital. Abbey doesn't really seem to care if she drinks a bottle of pure-mommy's milk or one w/ formula added - she just doesn't drink very much - only about an ounce or two per feeding. She still nurses from me as much as possible, but since I have returned to work she is drinking from a bottle during the weekdays; this is when we add the formula.Her doctor's other recommendation was to try some solids - hence the sweet potatoes tonight! Being that she's not much of an eater he suggested we start w/ some of the "yellow" veggies. She really seemed to like them, smacking her lips & gulping down the few bites I gave her. Yes, most 4 month-old infants start w/ cereal, but since she's such a lite eater, doc didn't want to waste those precious bites on cereal. Veggies have more nutrition than the cereal and the added formula in the bottles will provide the extra iron she needs.
Abbey is now all caught up w/ her vaccines (received 5 yesterday - 4 shots, 1 oral) - what a trooper. She is really starting to test her vocal cords, every day brings a new sound from those tiny lips.
She wears her brace like a true champ; lifts those feet straight in the air - she also likes to untie her shoe laces. I'm just waiting for the day when she bonks herself in the head! That's going to hurt!
February 2007
2/5/07 – I know, I know, I’m sorry we’ve been so long at updating the site. Life has officially taken over! Abbey is doing great! As you can see, these are her new shoes/brace! I (Jill) think I have finally figured out all the tricks to getting them on her correctly. She’s been in them since 1/19 so almost 3 weeks. We had to endure some blisters & such but its just all part of it. She is such a tolerant child. Some good news from her Orthopedic surgeon; he does not believe he will do anything to correct her pelvis. This means one less surgery (for now) and recovery of 3 months in a body cast! Praise God! He intends to watch how she grows in this area but is very hopeful we will not have to do anything – EVER! (This is where your continued prayers come in!) More good news from her Urologist; her kidneys look great – no swelling. The recent sonogram showed some “debris in her bladder” but without any infection so he is not concerned at this time. He explained that the debris is due to her bladder not being completely emptied and should infection arise, we will have to catheterize her to ensure her bladder empties correctly. (Prayers here too please!) Overall, Abbey is coming along great. 9.5 pounds and 22 inches long at her last Pediatrician visit. She is a little on the petite side, but certainly on the charts. We ask you to keep us in your thoughts as Jill returns to work; a bittersweet decision that lies heavy on our hearts. Fortunately, her company allows her to work from home. Without this opportunity our options would be limited. Our wonderful sitter has no doubt accepted Abbey and has already adapted to her special needs. Again, God has blessed us with this gift, for we could not do it without her.
2-16-07 New Site, more updates?
OK, so hopefully you've all found us now...please bookmark this new site. The administrator of the other site (who hosts sites as a hobby) has taken another job & doesn't seem to have the time available to meet our needs - we know you want new information fast! :) We'll do our best.
Here's our sweet girl sitting in her "Bumbo" - she loves being upright. She's 4 months old today! You can see her brace here - not that bad huh? The little shoes are actually quite cute! She seems to be doing fine with it. Her heels are still a little red where the shoes tend to rub, but it's just all part of it. When laying on a flat surface like the floor or the couch, she'll lift those legs straight up in the air - it's quite funny! We head back to TSRH next Tuesday for a follow-up appointment with her OS (Orthepedic Surgeon).
Just had to add this photo of Amanda...she was very amused with herself as she stood right in the way of the camera while I was trying to get a shot of Abbey, I must admit I was just as amused. I think Amanda is starting to understand that little sister demands a lot of attention. "Mr. Naughty" is getting too much play time these days as Amanda is finding her own ways to get attention.
Good visit to TSRH today - Abbey got a new pair of shoes! They look exactly the same as the old ones, just a little bigger. Doc thinks her feet are looking great & the sonogram of her hips/pelvis looks good too. Oh my we are blessed. Unless the new shoes cause major blisters or redness that won't go away, we will not return to TSRH for a month! Abbey wears this brace all the time for now. We take it off about 3 times a day for about 30 minutes to allow her to stretch and to check for blisters & redness (to which we cover w/ band aids). She definitely has some battle wounds, but they'll heal.
At next months visit they will do a sonogram of her spinal cord & nerves at the base of her spine so that they can begin to understand and plan for what needs to be done (if anything). The original MRI (while she was at Children's Hospital) showed slight spina bifada (un-exposed & without paralysis) and that the nerves at the base of her spine are tethered; both of these items are thought to be operable - time will tell.
We continue to thank all of you, our dear friends who keep us in your prayers...and also to those wonderful "Tuesday night supper club" participants who have kept us fed for the last 4 months! It may only be a meal to you, but for us it has been a sign of your friendship and generosity, for which we are forever grateful. We look forward to a time when we can return your kindness.
2-16-07 New Site, more updates?OK, so hopefully you've all found us now...please bookmark this new site. The administrator of the other site (who hosts sites as a hobby) has taken another job & doesn't seem to have the time available to meet our needs - we know you want new information fast! :) We'll do our best.
Here's our sweet girl sitting in her "Bumbo" - she loves being upright. She's 4 months old today! You can see her brace here - not that bad huh? The little shoes are actually quite cute! She seems to be doing fine with it. Her heels are still a little red where the shoes tend to rub, but it's just all part of it. When laying on a flat surface like the floor or the couch, she'll lift those legs straight up in the air - it's quite funny! We head back to TSRH next Tuesday for a follow-up appointment with her OS (Orthepedic Surgeon).
Just had to add this photo of Amanda...she was very amused with herself as she stood right in the way of the camera while I was trying to get a shot of Abbey, I must admit I was just as amused. I think Amanda is starting to understand that little sister demands a lot of attention. "Mr. Naughty" is getting too much play time these days as Amanda is finding her own ways to get attention.
2-20-07 Baby's got a new pair of shoes!
Good visit to TSRH today - Abbey got a new pair of shoes! They look exactly the same as the old ones, just a little bigger. Doc thinks her feet are looking great & the sonogram of her hips/pelvis looks good too. Oh my we are blessed. Unless the new shoes cause major blisters or redness that won't go away, we will not return to TSRH for a month! Abbey wears this brace all the time for now. We take it off about 3 times a day for about 30 minutes to allow her to stretch and to check for blisters & redness (to which we cover w/ band aids). She definitely has some battle wounds, but they'll heal.At next months visit they will do a sonogram of her spinal cord & nerves at the base of her spine so that they can begin to understand and plan for what needs to be done (if anything). The original MRI (while she was at Children's Hospital) showed slight spina bifada (un-exposed & without paralysis) and that the nerves at the base of her spine are tethered; both of these items are thought to be operable - time will tell.
We continue to thank all of you, our dear friends who keep us in your prayers...and also to those wonderful "Tuesday night supper club" participants who have kept us fed for the last 4 months! It may only be a meal to you, but for us it has been a sign of your friendship and generosity, for which we are forever grateful. We look forward to a time when we can return your kindness.
January 2007
1/3/07 – Happy New Year! Sorry it has been so long since we have done an update; the holidays found us quite busy! We hope everyone had a great holiday. With your continued prayer and Gods grace, ours was WONDERFUL. Abbey is doing quite well. Our last visit to TSRH was Dec 19. At that appointment they determined her foot was ready for the “heel cord release”. Yes, it is what it sounds like; they make a small incision and cut the Achilles tendon. The foot is then put in a cast and allowed to heal for 4 weeks. (The left foot did not require this procedure.) Actually, both legs are in casts. Even though the left foot did not require the release, it could not go 4 weeks without some kind of correction or it would have gone back to its previous position. All of this is done so that she can be fit for the brace; which is really just special little shoes with a bar in-between that holds the feet in proper position. So for now Abbey is enjoying being at home, eating and sleeping – some times better than Amanda! God bless you all as we move into the New Year; we continue to ask for your thoughts and prayers. We’ll try to do better at updating the site as our lives are slowly settling in with this beautiful addition to our family.
And would you look at that smile? Actually, the smile picture was taken before the casts were removed…
1/10/07 – A few weeks shy of her official 3 month birthday and Abbey appears to be right on schedule…smiling, cooing, has found her hands and rather enjoys the taste of them! SO CUTE! She laughs out loud (right after she has fallen asleep) and one night I was lucky enough to have my MP3 player next to me so I got a little of it recorded – it’ll melt your heart! We can’t wait until next Friday, when Abbey gets her casts off – oh what a day to celebrate!
1/15/07 – Sorry no new photos yet, I’m trying to catch Abbey smiling! I just wanted to do a quick post (which is about all I have time for these days) to share with you how amazed I am at how Abbey has adapted to these casts she has had on for the last 7 weeks…when I change her diaper she raises her legs straight up in the air! Can you imagine how strong her legs and abs must be? Abs of steel (watch out Leisa!)! I’ve learned to stay clear of her swinging legs – those plaster legs can really pack a punch!
1/22/07 – Oh Happy Day! No more casts!
And would you look at that smile? Actually, the smile picture was taken before the casts were removed…picts of her new shoes/brace will follow in the coming days. The doctors are very pleased with her feet and so now she will wear the brace for about 3 months, 23 hours a day. After that, just when she sleeps until she’s 2 or 3 years old. Check out the new photos! Abbey & Amanda shared their first snowfall w/ daddy!
December 2006
12/5/06 – Where does the time go? Can you relate? It must be the hustle and bustle of the holiday season. I have been meaning to sit down and crank out something, but old father time will not stop. Now you can relate! Abbey just received her second round of casts. The doctors were very pleased to see that both feet are responding well to the treatment. He informed us that we will continue our weekly visit to TSRH for several weeks before they perform the surgical procedure of releasing the heal cord. Thank you again for all the cards and emails. It fills out hearts with love each time we read your words. Love, JJAA
12/14/06 – We blink and a week (plus) has gone bye. We are 3 weeks into the casting procedure and what an experience it has been. Abbeys left foot (which happened to be the better of the two) does not seem to like the casts very much. Two to three days after receiving a new cast, her little toes start to swell. No one really knows why; perhaps it’s too tight or more likely because of her spinal cord issue, there could be some strange signals being sent down that leg. At any rate what it means is that we have to take a trip back to the hospital to have the cast removed and replaced. A little inconvenient but we take it all in stride. We expect to complete the casting procedure in about 4 more weeks. Your prayers for little Abbeys feet are most appreciated! Other than that she is doing very well; up to about 9 pounds now! She eats & sleeps very well, has a great disposition & tolerates Amanda as best as any of us can! Ha!
12/14/06 – We blink and a week (plus) has gone bye. We are 3 weeks into the casting procedure and what an experience it has been. Abbeys left foot (which happened to be the better of the two) does not seem to like the casts very much. Two to three days after receiving a new cast, her little toes start to swell. No one really knows why; perhaps it’s too tight or more likely because of her spinal cord issue, there could be some strange signals being sent down that leg. At any rate what it means is that we have to take a trip back to the hospital to have the cast removed and replaced. A little inconvenient but we take it all in stride. We expect to complete the casting procedure in about 4 more weeks. Your prayers for little Abbeys feet are most appreciated! Other than that she is doing very well; up to about 9 pounds now! She eats & sleeps very well, has a great disposition & tolerates Amanda as best as any of us can! Ha!
November 2006
11/1/06 – The word “strength” has different descriptive meanings, like physical, mental, and spiritual to name a few. Jill and I have gained an enormous amount of each through your prayer and uplifting emails. This strength has provided us the peace and grace to finish the race. Abigail is healing each and everyday. She is a little night owl, but so is her Daddy. This will end once she gets into a feeding routine. We hope! Happy All Saints Day! Special thanks to St. Joseph and his incredible strength. Our love.
11/2/06 – The past couple of days we have been working with a speech pathologist, you maybe wondering “what?” Well, Abigail is not exactly ready to recite the alphabet; she is really re-learning how to swallow. She is a very quick study, as a milestone was reached today! Yes, Abbey latched tightly onto Mom without a hitch. Let the feeding begin! Jill and I are so blessed to be her parents! We are also blessed to have you on this journey. Thank you for all your love and spiritual support.
11/3/06 – Today was a very special day. Jill and Amanda were reunited for the first time since Halloween. Sorry, I don’t think I’ve mention it, but Jill has been living at the hospital.(while I’ve been sharpening my motherly skills) Seeing mother and daughter embrace was a classic Hallmark moment.(made me cry) This was especially touching as it was the perfect gift for Jill on her birthday. Even more special was the introduction of Amanda and Abigail. The image of Amanda leaning over and placing her tiny lips on Abigail’s forehead will forever be etched in my brain. Truly a beautiful sight! I think children have a sixth sense when it comes to situations like this. She was so compassionate. Abigail is doing very well! She has really caught on to feeding and processes it like a champ. Her recovery continues to improve daily and we pray that we can have her home in 2 ½ weeks. We appreciate all the love you continue to pour out of your hearts. P.S. Thanks again to everyone for making today meaningful. You know who you are.
11/4/06 - Not much to report today. Abigail continues to increase her feeding times and is more alert each and everyday. She is healing just fine. Hope you and yours are doing well. Much love.
11/5/06 – Baby and Mama are doing great! The nurses are all battling to see who gets Abigail and Jill for their daily schedule; it seems that they enjoy their smiling faces. Well, can you blame them? They like them so much, that they gave them a room upgrade. The room is bigger and has a better view. I think it pays off to be courteous and respectful. Tomorrow we will have an ultrasound. This will determine whether or not the three tubes will be removed from the bladder and kidneys. We know our little baby is healing from prayer. You should see her smile.
11/6/06 – One down, two to go! The urologist pulled one the tubes today (ouch!) I think Abbey was relieved! They are going to evaluate the other 2 this week. The good news is there is no swelling internally. In order for us to bring our little gobbler home in time for Thanksgiving, we must get some meat on her bones. It looks like Mom is taking care of her, as she has already put on some ounces. Speaking of food, we would like to thank you for all the food that has hit our doorstep (yum yum). It looks like a freezer is in our midst. Abbey says hello!
11/9/06 - The theme of this entry is "switching roles."Since, Halloween Jill has been living at the hospital and I have been home with Amanda. Things changed today, as we are experimenting with a new feeding technique. This will allow Jill a much deserved break from here. Tomorrow the doctors will cap off the final ureter tube. They want to make sure there is proper flow, before they disconnect. Keep your fingers crossed! Please pray that Abbey continues to put on weight. She needs some love handles!
11/10/06 – Time really does fly. I just calculated that we have been in the hospital for 25 days. The good news is we might make it home earlier than expected, as early as next Tuesday. Can you believe it? Of course, this depends on Abbeys weekend. She began utilizing her diaper a little more today and even gained a couple ounces. Yeah! We will definitely keep you posted over the weekend on her status. Once again, Jill and I are so appreciative of your loving support.
11/11/06 – Today was special, as our family reunited for few hours at the hospital. Actually this was the first time we have eaten together as a family. We ordered lunch from the cafeteria and enjoyed the time. Three new pics are available for your viewing. Abigail is gaining weight everyday. I think she is ready to come home. God continues to amaze us. Your prayers continue to pave the healing road for our Abigail. We cannot thank you enough. Love! JJAA
11/12/06 – Two steps forward, one step back. Going into the surgery we knew that there was a chance of a bladder or kidney infection. Just so happens, two days after the surgery Abbey developed a yeast infection. Although very common, she was treated with an antibiotic and supposedly it cleared up. Well, today she warned us that she is not ready to make the trip home. A fever is what caught our attention, although not a severe fever, but just the same a fever. Immediately, the doctors needed blood and urine to determine if there is an infection. As of 10 pm, we have not received the results. The doctors also decided to reattach one of the ureter tubes to evaluate the kidneys and bladder. We know that this is not a 40 yard dash, or a mile run. A friend called it a marathon, we agree. So, keep Abbey in your prayers tonight.
11/13/06 – First, I would like to give my wife a BIG high five for the teamwork we exhibited during our premier ostomy exchange. The nurses were actually impressed! Jill and I pulled the old switch a roo tonight, so I am reporting live from mission control. I am ecstatic to report that Abigails fever is under control. She has been administered the necessary antibiotics to counter the infection and the doctors are pleased with how resilient she is. A true fighter in every sense of the word! She will probably be our little hockey player (just kidding Jill) The doctors are going to evaluate the central line tomorrow. They will tell us if we need it or not. We were initially scheduled to bring Abigail home tomorrow, but the docs have decided that it would be in our best interest to extend our stay a few more days. So, on the eve of celebrating our 1 month anniversary, I would like to share this special prayer: Angel of God, my guardian dear, to whom his love commits me here; ever this day or night be at my side, to light and guard, to rule and guide. Amen.
11/14/06 – Good news! Abbeys central line has been extracted. This tube really served its purpose during the surgery, since then it has seen limited playing time. We are relieved, because it is one less thing to concern ourselves with. Still no time frame for departure. We just take it one day at a time.
11/15/06 – Jill and I are pleased to report that the doctors have clamped the lone remaining ureter tube. In addition, they have a catheter in place. Urologically speaking she is firing from all cylinders. Abbey continues to add the necessary pounds. A whopping 7.4lbs! If this trend persists we might even come home without the feeding tube. Oh, that would be a blessing! Thank you all for your much needed prayers. They radiate us each and everyday. Much love! JJAA
11/16/06 – We will be looking forward to tomorrow, as the doctors have informed us that they will remove the last ureter tube. This is a big step forward! Today, the nutritionist wanted to evaluate the intake of milk through a bottle feed. Well, our little champion decided to engulf the initial 30cc, and then she moved onto Mama for another 7 minutes. That girl can eat!
11/17/06 – We mentioned previously that Abigail resembled a road map with many tubes and wires intersecting her. Well, we are elated to tell you that only the feeding tube remains. The doctors have ordered for it to stay, even though it is inactive. Hopefully, Abbey will continue her vivacious appetite through the weekend. If so, she will bid farewell to her little yellow friend, the one who has resided in her tiny nostril for over 3 weeks.
11/18/06 - YEAH!! Say goodbye to the feeding tube. What a joy it is to see her without it! Tomorrow the doctors will remove the catheter to analyze her urine output. This will ultimately decide if we are allowed to come home. Pray that we will. Love, JJAA
11/19/06 - Packing it on! 7.5 lbs!! All systems go. No official release day or time. Stay tuned...
11/20/06 – Dear Friends & Family: First, Jill and I would like to thank you for taking a special interest in our daughter Abigail. We have been overwhelmed by the numerous emails, cards, gifts, flowers, and food. Mostly, we have felt so much comfort through your gift of prayer. Your compassion has given our daughter, as well as us the necessary strength to successfully make it through the first stage of this race. Yes, we are pleased to announce that Abigail will be released from the hospital today. A joyous day indeed! We will continue to keep you informed of our little Abbeys progress. Today is the day we have been waiting for and we are so excited to share it with you! May God bless you and your family. Love, JJAA
11/23/06 – Happy Thanksgiving one and all! What a blessing to be home with Abigail, Amanda, and Jill. Abbey is adjusting to her new digs, as we are doing the same. Not much sleep around here. As soon as Abbey came home, Amanda decided that she wanted all the attention. She decided to come down with a double ear infection. Poor thing! This Thanksgiving we are grateful for all the love and support you have afforded us. We are also thankful to have such gracious friends and family. This Thanksgiving will be cherished forever! All our love, JJAA
11/27/06 – It is SO wonderful to be home! Sad to say, I (Jill) missed doing boring things around the house like laundry, but I did! Aunt Jan to the rescue! She came for the weekend and helped us get a little more organized! Unfortunately we are now all fighting the sniffles & congestion and doing our best to protect Abbey from the germs floating around this house. Tomorrow is our first appointment at Scottish Rite; here they will further investigate how to approach Abbeys feet, pelvis & spine. We will let you know how it goes…please continue to pray for further healing and success as we approach the next phase. (Amanda is feeling much better, thank goodness!)
11/28/06 – Fighting germ warfare around here! Amanda is back to her old tricks, but Daddy went down with the crud. Oh well, we will get through it! What a wonderful place Texas Scottish Rite Hospital is. There is something about that place that just screams “we love kids” A very pleasant feeling for both Jill and I. Our appointment was very encouraging today, as we met with two orthopedic doctors. To our surprise, Abigail left there with two plaster casts on her legs. These casts will be removed weekly and will solely be correcting her clubbed feet. There is a picture of Mama and baby on the site. She has adjusted to the added weight fine. They said Abbey will be using the casts up to six weeks, then graduate to a brace device named the Ponsetti. Sounds fast!
11/2/06 – The past couple of days we have been working with a speech pathologist, you maybe wondering “what?” Well, Abigail is not exactly ready to recite the alphabet; she is really re-learning how to swallow. She is a very quick study, as a milestone was reached today! Yes, Abbey latched tightly onto Mom without a hitch. Let the feeding begin! Jill and I are so blessed to be her parents! We are also blessed to have you on this journey. Thank you for all your love and spiritual support.
11/3/06 – Today was a very special day. Jill and Amanda were reunited for the first time since Halloween. Sorry, I don’t think I’ve mention it, but Jill has been living at the hospital.(while I’ve been sharpening my motherly skills) Seeing mother and daughter embrace was a classic Hallmark moment.(made me cry) This was especially touching as it was the perfect gift for Jill on her birthday. Even more special was the introduction of Amanda and Abigail. The image of Amanda leaning over and placing her tiny lips on Abigail’s forehead will forever be etched in my brain. Truly a beautiful sight! I think children have a sixth sense when it comes to situations like this. She was so compassionate. Abigail is doing very well! She has really caught on to feeding and processes it like a champ. Her recovery continues to improve daily and we pray that we can have her home in 2 ½ weeks. We appreciate all the love you continue to pour out of your hearts. P.S. Thanks again to everyone for making today meaningful. You know who you are.
11/4/06 - Not much to report today. Abigail continues to increase her feeding times and is more alert each and everyday. She is healing just fine. Hope you and yours are doing well. Much love.
11/5/06 – Baby and Mama are doing great! The nurses are all battling to see who gets Abigail and Jill for their daily schedule; it seems that they enjoy their smiling faces. Well, can you blame them? They like them so much, that they gave them a room upgrade. The room is bigger and has a better view. I think it pays off to be courteous and respectful. Tomorrow we will have an ultrasound. This will determine whether or not the three tubes will be removed from the bladder and kidneys. We know our little baby is healing from prayer. You should see her smile.
11/6/06 – One down, two to go! The urologist pulled one the tubes today (ouch!) I think Abbey was relieved! They are going to evaluate the other 2 this week. The good news is there is no swelling internally. In order for us to bring our little gobbler home in time for Thanksgiving, we must get some meat on her bones. It looks like Mom is taking care of her, as she has already put on some ounces. Speaking of food, we would like to thank you for all the food that has hit our doorstep (yum yum). It looks like a freezer is in our midst. Abbey says hello!
11/9/06 - The theme of this entry is "switching roles."Since, Halloween Jill has been living at the hospital and I have been home with Amanda. Things changed today, as we are experimenting with a new feeding technique. This will allow Jill a much deserved break from here. Tomorrow the doctors will cap off the final ureter tube. They want to make sure there is proper flow, before they disconnect. Keep your fingers crossed! Please pray that Abbey continues to put on weight. She needs some love handles!
11/10/06 – Time really does fly. I just calculated that we have been in the hospital for 25 days. The good news is we might make it home earlier than expected, as early as next Tuesday. Can you believe it? Of course, this depends on Abbeys weekend. She began utilizing her diaper a little more today and even gained a couple ounces. Yeah! We will definitely keep you posted over the weekend on her status. Once again, Jill and I are so appreciative of your loving support.
11/11/06 – Today was special, as our family reunited for few hours at the hospital. Actually this was the first time we have eaten together as a family. We ordered lunch from the cafeteria and enjoyed the time. Three new pics are available for your viewing. Abigail is gaining weight everyday. I think she is ready to come home. God continues to amaze us. Your prayers continue to pave the healing road for our Abigail. We cannot thank you enough. Love! JJAA
11/12/06 – Two steps forward, one step back. Going into the surgery we knew that there was a chance of a bladder or kidney infection. Just so happens, two days after the surgery Abbey developed a yeast infection. Although very common, she was treated with an antibiotic and supposedly it cleared up. Well, today she warned us that she is not ready to make the trip home. A fever is what caught our attention, although not a severe fever, but just the same a fever. Immediately, the doctors needed blood and urine to determine if there is an infection. As of 10 pm, we have not received the results. The doctors also decided to reattach one of the ureter tubes to evaluate the kidneys and bladder. We know that this is not a 40 yard dash, or a mile run. A friend called it a marathon, we agree. So, keep Abbey in your prayers tonight.
11/13/06 – First, I would like to give my wife a BIG high five for the teamwork we exhibited during our premier ostomy exchange. The nurses were actually impressed! Jill and I pulled the old switch a roo tonight, so I am reporting live from mission control. I am ecstatic to report that Abigails fever is under control. She has been administered the necessary antibiotics to counter the infection and the doctors are pleased with how resilient she is. A true fighter in every sense of the word! She will probably be our little hockey player (just kidding Jill) The doctors are going to evaluate the central line tomorrow. They will tell us if we need it or not. We were initially scheduled to bring Abigail home tomorrow, but the docs have decided that it would be in our best interest to extend our stay a few more days. So, on the eve of celebrating our 1 month anniversary, I would like to share this special prayer: Angel of God, my guardian dear, to whom his love commits me here; ever this day or night be at my side, to light and guard, to rule and guide. Amen.
11/14/06 – Good news! Abbeys central line has been extracted. This tube really served its purpose during the surgery, since then it has seen limited playing time. We are relieved, because it is one less thing to concern ourselves with. Still no time frame for departure. We just take it one day at a time.
11/15/06 – Jill and I are pleased to report that the doctors have clamped the lone remaining ureter tube. In addition, they have a catheter in place. Urologically speaking she is firing from all cylinders. Abbey continues to add the necessary pounds. A whopping 7.4lbs! If this trend persists we might even come home without the feeding tube. Oh, that would be a blessing! Thank you all for your much needed prayers. They radiate us each and everyday. Much love! JJAA
11/16/06 – We will be looking forward to tomorrow, as the doctors have informed us that they will remove the last ureter tube. This is a big step forward! Today, the nutritionist wanted to evaluate the intake of milk through a bottle feed. Well, our little champion decided to engulf the initial 30cc, and then she moved onto Mama for another 7 minutes. That girl can eat!
11/17/06 – We mentioned previously that Abigail resembled a road map with many tubes and wires intersecting her. Well, we are elated to tell you that only the feeding tube remains. The doctors have ordered for it to stay, even though it is inactive. Hopefully, Abbey will continue her vivacious appetite through the weekend. If so, she will bid farewell to her little yellow friend, the one who has resided in her tiny nostril for over 3 weeks.
11/18/06 - YEAH!! Say goodbye to the feeding tube. What a joy it is to see her without it! Tomorrow the doctors will remove the catheter to analyze her urine output. This will ultimately decide if we are allowed to come home. Pray that we will. Love, JJAA
11/19/06 - Packing it on! 7.5 lbs!! All systems go. No official release day or time. Stay tuned...
11/20/06 – Dear Friends & Family: First, Jill and I would like to thank you for taking a special interest in our daughter Abigail. We have been overwhelmed by the numerous emails, cards, gifts, flowers, and food. Mostly, we have felt so much comfort through your gift of prayer. Your compassion has given our daughter, as well as us the necessary strength to successfully make it through the first stage of this race. Yes, we are pleased to announce that Abigail will be released from the hospital today. A joyous day indeed! We will continue to keep you informed of our little Abbeys progress. Today is the day we have been waiting for and we are so excited to share it with you! May God bless you and your family. Love, JJAA
11/23/06 – Happy Thanksgiving one and all! What a blessing to be home with Abigail, Amanda, and Jill. Abbey is adjusting to her new digs, as we are doing the same. Not much sleep around here. As soon as Abbey came home, Amanda decided that she wanted all the attention. She decided to come down with a double ear infection. Poor thing! This Thanksgiving we are grateful for all the love and support you have afforded us. We are also thankful to have such gracious friends and family. This Thanksgiving will be cherished forever! All our love, JJAA
11/27/06 – It is SO wonderful to be home! Sad to say, I (Jill) missed doing boring things around the house like laundry, but I did! Aunt Jan to the rescue! She came for the weekend and helped us get a little more organized! Unfortunately we are now all fighting the sniffles & congestion and doing our best to protect Abbey from the germs floating around this house. Tomorrow is our first appointment at Scottish Rite; here they will further investigate how to approach Abbeys feet, pelvis & spine. We will let you know how it goes…please continue to pray for further healing and success as we approach the next phase. (Amanda is feeling much better, thank goodness!)
11/28/06 – Fighting germ warfare around here! Amanda is back to her old tricks, but Daddy went down with the crud. Oh well, we will get through it! What a wonderful place Texas Scottish Rite Hospital is. There is something about that place that just screams “we love kids” A very pleasant feeling for both Jill and I. Our appointment was very encouraging today, as we met with two orthopedic doctors. To our surprise, Abigail left there with two plaster casts on her legs. These casts will be removed weekly and will solely be correcting her clubbed feet. There is a picture of Mama and baby on the site. She has adjusted to the added weight fine. They said Abbey will be using the casts up to six weeks, then graduate to a brace device named the Ponsetti. Sounds fast!
October 2006
10/22/06-First, we would like to thank Molly and Chuck Sponsler for sponsoring this site (www.abigailmariedeller.com). We are blessed to have you in our lives. Thank you for this generous gift of communication, that will keep so many people informed. You are truly the definition of "friends". Where do we begin?...Abigail Marie "Abbey" came into this world with a special purpose. She was born with an extremely rare birth defect (1 in 400,000 live births) Her condition is referred to as Cloacae Extrophy. There are additional issues which complicate her situation regarding the pelvis, spine and feet, but rest assured her heart, lungs and brain are fully functioning and normal.
Update, we have confirmed that Abigail will undergo surgery tomorrow 10/23 at 3:30pm. They have assembled a team of specialists in order to perform an estimated 8 hour operation. We ask you to continue your thoughts and prayers during this time and in the days to come. We already know that your prayers are working, as Jill and I are at peace with Gods grace. We are strong and ready for the journey! We love you and may God bless you. The Dellers
We would like to thank you for all of your prayers during this trying time. We ask you to please continue them as we near surgery on Monday. Jill and I are so blessed and grateful to have such a tremendous support system. We want you to know that we love you and appreciate each and every one of you. May God bless you! Jill, John, Amanda, and Abigail
10/24/06-We are extremely happy to report that Abigail's surgery was a success! Praise God! The doctors were able to repair all of her external parts, place them inside & close the opening. She has several tubes draining fluids and will remain sleeping & medicated for a day or two; she needs to remain as still as possible while her main wound heals & her body adjusts to the new position of her organs. As our doctor stated "it was a good day". We want to thank each of you for your prayers. Your faith in God is shining through to our daughter. We ask that you continue to pray, as we go through the healing process and prepare for surgeries to come. We have been so emotionally moved by all of your emails, phone calls and cards. We are very blessed to have you in our lives.
10/25/06 - It was another quiet day today; like yesterday. Abigail is stable and recovering well. The doctors were pleasantly surprised that she does not have much swelling and the nurses are glad to report on the amount of urine that the tubes are draining from her kidneys and bladder. We learned this evening that they have taken her off of the medicine that immobilizes her. What this means is that over night and tomorrow she should begin to slowly awake. As she begins to move she should also begin to take small breaths on her own. This will allow the ventilator to be slowly backed off and eventually removed. We ask for continued prayers of healing as she has several weeks of recovery still ahead. 4 weeks is what we expect. We thank you for all your love and support!
10/26/06 - Another day of recovery. Abigail was taken off another medicine, the one that has kept her asleep since before the surgery. YEAH! She is responding well by starting to move her arms, legs and toes. She even tried to open her eyes a few times. She has also started taking a few breaths, so the doctors have decided to begin weaning her from the ventilator. Her kidneys are in full swing now, today she even wet the bed!
10/27/06 - We are happy to report that Abigail continues to show signs of improvement. The doctors have expressed that the healing road takes time. We embrace this and appreciate all the interaction we have with these special people. They are truly dynamic human beings with such huge hearts. We are blessed to have them caring for our daughter. Again, please continue your powerful prayers. They are working!
10/28/06- Great News! Abbeys ventilator was switched to auto mode today. This means every breath she takes is her own, and we fully expect to say goodbye to Mr. Ventilator tomorrow. She continues to process urine; so much so, they have replaced the syringes with bags. We are also beginning to see signs of bowel activity. These are all positive indicators as we move forward. Breaking news 11:40pm just spoke with the hospital; Abbey is enjoying her sponge bath! Thank you for all your love and spiritual support. Love, The Dellers
10/29/06 – Check out the new photos! Slow progress today; Mr. Ventilator did not come out as soon as we had hoped. Abbeys throat was a little swollen, so it was necessary to wait and tend to that prior to removing the breathing tube. She is really awake now and really hates that tube! She let the nurse have it this evening; her first temper-tantrum (she is her mothers-daughter!) 9:30 pm- Abbey is free from the breathing tube. Alleluia! I can hear her now...bring on mommas milk! Much love.
10/30/06 – A bit more progress today. Abigail is being weaned from her pain medication and although somewhat irritated about it, seems to be tolerating it well. The breathing tube now gone has been replaced with a feeding tube (through her nose directly into the stomach) and she is now receiving a very small amount of milk. The highlight of the day was finally being able to hold her; we couldn’t get to the hospital fast enough! The healing road is still a long one and your continued prayers are much appreciated.
10/31/06 – Happy Halloween! Well, you could say we had tricks and treats today. The tricks were simply learning the “tricks of the trade” Educating ourselves on how to care for our daughter. Things like caring for her numerous tubes, stretching her feet, and teaching the art of feeding. The treat was much sweeter as we took one step closer to bringing her home. That’s right! We are officially out of the NICU. Yes, Abigail thought 2 weeks was quite enough time there. Jill and I cannot thank the individuals of the 11th floor trauma unit enough. They were phenomenal! They truly live up to there reputation as the worlds best. Thank you all! Abigail will continue her healing journey on the Urology floor, where she will receive tremendous care. We hope and pray that we will be able to have our family under one roof by Thanksgiving. How fitting that will be! God bless you all.
Update, we have confirmed that Abigail will undergo surgery tomorrow 10/23 at 3:30pm. They have assembled a team of specialists in order to perform an estimated 8 hour operation. We ask you to continue your thoughts and prayers during this time and in the days to come. We already know that your prayers are working, as Jill and I are at peace with Gods grace. We are strong and ready for the journey! We love you and may God bless you. The Dellers
We would like to thank you for all of your prayers during this trying time. We ask you to please continue them as we near surgery on Monday. Jill and I are so blessed and grateful to have such a tremendous support system. We want you to know that we love you and appreciate each and every one of you. May God bless you! Jill, John, Amanda, and Abigail
10/24/06-We are extremely happy to report that Abigail's surgery was a success! Praise God! The doctors were able to repair all of her external parts, place them inside & close the opening. She has several tubes draining fluids and will remain sleeping & medicated for a day or two; she needs to remain as still as possible while her main wound heals & her body adjusts to the new position of her organs. As our doctor stated "it was a good day". We want to thank each of you for your prayers. Your faith in God is shining through to our daughter. We ask that you continue to pray, as we go through the healing process and prepare for surgeries to come. We have been so emotionally moved by all of your emails, phone calls and cards. We are very blessed to have you in our lives.
10/25/06 - It was another quiet day today; like yesterday. Abigail is stable and recovering well. The doctors were pleasantly surprised that she does not have much swelling and the nurses are glad to report on the amount of urine that the tubes are draining from her kidneys and bladder. We learned this evening that they have taken her off of the medicine that immobilizes her. What this means is that over night and tomorrow she should begin to slowly awake. As she begins to move she should also begin to take small breaths on her own. This will allow the ventilator to be slowly backed off and eventually removed. We ask for continued prayers of healing as she has several weeks of recovery still ahead. 4 weeks is what we expect. We thank you for all your love and support!
10/26/06 - Another day of recovery. Abigail was taken off another medicine, the one that has kept her asleep since before the surgery. YEAH! She is responding well by starting to move her arms, legs and toes. She even tried to open her eyes a few times. She has also started taking a few breaths, so the doctors have decided to begin weaning her from the ventilator. Her kidneys are in full swing now, today she even wet the bed!
10/27/06 - We are happy to report that Abigail continues to show signs of improvement. The doctors have expressed that the healing road takes time. We embrace this and appreciate all the interaction we have with these special people. They are truly dynamic human beings with such huge hearts. We are blessed to have them caring for our daughter. Again, please continue your powerful prayers. They are working!
10/28/06- Great News! Abbeys ventilator was switched to auto mode today. This means every breath she takes is her own, and we fully expect to say goodbye to Mr. Ventilator tomorrow. She continues to process urine; so much so, they have replaced the syringes with bags. We are also beginning to see signs of bowel activity. These are all positive indicators as we move forward. Breaking news 11:40pm just spoke with the hospital; Abbey is enjoying her sponge bath! Thank you for all your love and spiritual support. Love, The Dellers
10/29/06 – Check out the new photos! Slow progress today; Mr. Ventilator did not come out as soon as we had hoped. Abbeys throat was a little swollen, so it was necessary to wait and tend to that prior to removing the breathing tube. She is really awake now and really hates that tube! She let the nurse have it this evening; her first temper-tantrum (she is her mothers-daughter!) 9:30 pm- Abbey is free from the breathing tube. Alleluia! I can hear her now...bring on mommas milk! Much love.
10/30/06 – A bit more progress today. Abigail is being weaned from her pain medication and although somewhat irritated about it, seems to be tolerating it well. The breathing tube now gone has been replaced with a feeding tube (through her nose directly into the stomach) and she is now receiving a very small amount of milk. The highlight of the day was finally being able to hold her; we couldn’t get to the hospital fast enough! The healing road is still a long one and your continued prayers are much appreciated.
10/31/06 – Happy Halloween! Well, you could say we had tricks and treats today. The tricks were simply learning the “tricks of the trade” Educating ourselves on how to care for our daughter. Things like caring for her numerous tubes, stretching her feet, and teaching the art of feeding. The treat was much sweeter as we took one step closer to bringing her home. That’s right! We are officially out of the NICU. Yes, Abigail thought 2 weeks was quite enough time there. Jill and I cannot thank the individuals of the 11th floor trauma unit enough. They were phenomenal! They truly live up to there reputation as the worlds best. Thank you all! Abigail will continue her healing journey on the Urology floor, where she will receive tremendous care. We hope and pray that we will be able to have our family under one roof by Thanksgiving. How fitting that will be! God bless you all.
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